EVLYNN: The Value of Sadness | Psychology Today

Sadness is often mistakenly confused with depression. Unlike depression, sadness is a natural part of life and is usually connected with certain experiences of pain or loss or even a meaningful moment of connection or joy that makes us value our lives. Depression, on the other hand, can arise without a clear explanation or can result from an unhealthy, non-adaptive reaction to a painful event, where we either steel ourselves against our natural reaction to the event or get overwhelmed by it.

Source: The Value of Sadness | Psychology Today

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What can one do?

“My love, were it in my power, I would sadly grant thee this boon. But, we have to continue to follow His Plan for us. Let’s go forth and speak no more of this. Who ever is last will be last. It will be His choice; not ours. We’re but humble custodians of His temple on earth. It’s not our place to trump His plan. Whatever that plan be, know that I will be with you to my last breath.” — character “John” in CHURCH 10●19●62 Volume 2 Page 399

Tearfully putting one foot in front of the other.

—30—

EVLYNN: “Who ever is last will be last.”

2019-Feb-26

Today’s a sad day for me.  Interesting that this flowed into my email today.  I always wondered what rare blood disease that took her from us.  Hopefully, someday someone else will not have to go through it. 

“My love, were it in my power, I would sadly grant thee this boon. But, we have to continue to follow His Plan for us. Let’s go forth and speak no more of this. Who ever is last will be last. It will be His choice; not ours. We’re but humble custodians of His temple on earth. It’s not our place to trump His plan. Whatever that plan be, know that I will be with you to my last breath.” — character “John” in CHURCH 10●19●62 Volume 2 Page 399

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https://events-support.com/events/Rare_Disease_Day/page/1947

RARE DISEASE DAY AT NIH

Overview

Sponsored by the National Center for Advancing Translational Sciences and Clinical Center at the National Institutes of Health (NIH), Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect and NIH research collaborations under way to address scientific challenges and to advance new treatments. The goals are to:

  • Demonstrate the NIH commitment to helping people with rare diseases through research.
  • Highlight NIH-supported rare diseases research and the development of diagnostics and treatments.
  • Initiate a mutually beneficial dialogue among public and private researchers, patients, patient advocates and policymakers.
  • Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
  • Put a face on rare diseases by sharing stories of patients, their families and their communities.

Rare Disease Day at NIH will take place on Feb. 28, 2019, from 8:30 a.m. to 4:00 p.m. in the main auditorium of the Natcher Conference Center in Building 45 on the main NIH campus in Bethesda, Maryland. 

This year’s event will feature interactive panel discussions and more:

  • Collective research models for rare diseases.
  • Patient registries.
  • Rare cancer research initiatives.
  • No disease left behind, no patient left behind.
  • Posters and exhibits by rare disease groups and researchers.
  • Artwork, videos, and tours of the NIH Clinical Center and National Library of Medicine.
  • New this year will be a presentation of the first ever Zebbie award for the NCATS Rare Diseases are Not Rare! Challenge.

Please note that participants may be photographed or filmed as part of the event for use by the NIH and its designees for all purposes of education, instruction, or public information including publication or broadcast, print, television, radio, the internet, or promotional material. If you do not wish to be photographed, please indicate so on your registration form.

Admission is free, and the event is open to the public, including patients, patient advocates, health care providers, researchers, industry representatives, and government employees. In association with Global Genes®, participants are encouraged to wear their favorite pair of jeans.

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EVLYNN: Our Girl followed Grentz, Portland, and all the “Mighty Macs”

2018-Jul-30

http://www.dailyitem.com/sports/portland-remembered-most-for-her-friendship/article_738613ab-acfc-5501-9c17-cf315315e3ec.html

She followed them wistfully.  I assume imagining what might have been.

Requiescat In Pacem, Rene.  You’ll have at least one fan to greet you.

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MEMORIES: Summarizing a thousand days

2016-Jul-05

Thanks to an iPhone app, I know that I have been in a “new” relationship for a 1,000 days.

I picked three pictures that sort of summarizes my thousand days.

2016 Jun 30 AMH Hidden Lake

 

2016 Jun 30 hat

 

2016 Jun 30 fjr hat

 

Who else could get me happy to wear a dumb hat?

Laugh!

It’s been a heck of a ride!

I’m still hanging on.

Thanks to AMH.

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EVLYNN: Yet another bad day

“Don’t be ashamed to weep; ’tis right to grieve. Tears are only water, and flowers, trees, and fruit cannot grow without water. But there must be sunlight also. A wounded heart will heal in time, and when it does, the memory and love of our lost ones is sealed inside to comfort us.”
― Brian Jacques, Taggerung

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EVLYNN: Thanks, NJ MVC

You’ve heard me rant that the Gooferment is immoral, ineffective, and inefficient!

Here’s another classic.

Thanks NJ MVC for sending me the renewal for Evelyn’s handicapped placard. 

Now, I know, since there was no money involved, you could care less. (Her social security payment was recaptured within 12 hours of her passing.)

And, there was a NJ estate tax return filed with a copy of the Death Certificate. 

And, there was a NJ Jury Duty notice returned with a copy of the Death Certificate.

And, there was car registration retitled with a copy of the Death Certificate.

And, there was her NJ Drivers’ License renewal returned with a copy of the Death Certificate.

So, I guess you felt it necessary to send me yet another reminder!

Argh!

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MEMORIES: Ev’s last aunt laid to rest

IMG 0709

Sad!

What can I say.

Losing the threads that bind me to Our Girl. Bummer day!

From the Aunt Kay’s grave, you can see the 9/11 memorial at the cemetery.

At last, Aunt Kay is with Uncle Willie again.

[For those that have asked, she was 92.]

Requiescat In Pacem

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EVLYNN: 10,500 ml of my best platelets donated

I was able to donate a “triple”. 10,500 ml of my best platelets. (Laff! Since it’s about 95% of my platelets, it must include my “best”. Fret not, the body replaces them in 24 hours.) I’m told that’s enough to help 6 people. Or more, if the “bank” is short, then I presume they “cut” them. Ev’s bags ranged from a low of 190 ml to a high of 320 ml.

Feel free to join in. It’s truly the “gift of life”.

One of the regulars was a “no show”, so can you fill in?

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EVLYNN: Death and grief is universal

http://www.theatlantic.com/health/archive/2014/07/when-a-spouse-dies-abroad/372672/

When a Spouse Dies Abroad
Compounding the grief of loss are mountains of paperwork.
SOPHIA MALEKINJUL 5 2014, 12:30 PM ET

*** begin quote ***

When I finally reemerged, something about me was different. I was less afraid of how I appeared to others and more certain of how I wanted to live. Perhaps I was a little more reckless too. I became more creative. I painted a lot, something I’d let slide with the arrival of my children. You could say that I became more selfish, but as a consequence I also became stronger, and that made me more useful to others.

There is something about the lack of choice in the whole process of grief, the sheer overwhelming power of it—it rushes in like a huge wave, and in the end it forces surrender. From that surrendered state, answers did eventually arrive, but through a very different door than the questions. They came in stealthily. I am not sure precisely when, but I started to find that the questions mattered less. My anger subsided. Gradually I became aware of the everyday happiness of being alive again.

That simple, everyday happiness is not a mundane idea. It is really life’s essence. While I felt, and still feel, that life, like the ocean, can be treacherous, it is also vast and beautiful. It fills me with wonder.

*** end quote ***

Death, any death, is traumatic.

The closer the relative the harder it is.

And closing an estate is often easier said than done.

In the end, all you have is the sadness and loneliness of the “missing”.

Argh!

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MEMORIES: At 1600 three years ago

At 1600 three years ago … …

… … my life changed forever and unalterably. 

“My love, were it in my power, I would sadly grant thee this boon. But, we have to continue to follow His Plan for us. Let’s go forth and speak no more of this. Who ever is last will be last. It will be His choice; not ours. We’re but humble custodians of His temple on earth. It’s not our place to trump His plan. Whatever that plan be, know that I will be with you to my last breath.” — character “John” in CHURCH 10●19●62 Volume 2 Page 399

It was like I was prescient when I wrote that in 2009!

“… to my last breath.”

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MEMORIES: An anniversary passes

Today is “one of THOSE days”.

Just another sad day in the “sad season”.

It would have been 43 years today.

Saint Henry’s in Bayonne. High Hat reception. Pocono’s for a quickie honeymoon.

So much promise; so much life. And it was cut short. Longer than expected; shorter than needed.

Life’s just not fair. It’s just life.

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MEMORIES: Watching Army Navy game

It’s a cold snowy day.

I remember a similar day.

Our Girl, her Dad Jack, with the “boys” Craig and Scott went to the game.

Jack always wanted to see one.

That wish Our Girl was able to grant.

Took the minnie winnie to Philly.

It was bleak and cold.

She made “Chicken Soup in the Crock Pot”. (I found an outlet on a light pole in the lot.) And we went to the game.

Despite everyone wearing cold weather gear, we left at the end of the third quarter.

Boy, was that the best chicken soup we ever had. 

Laff.

I should know never schedule anything in Philly on the same week end as the Army Navy game.

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MEMORIES: Comes from I don’t know where?

“My attitude to money comes from …”

Men don’t usually care about money; to women it means home and hearth.

I get my attitude about comes from my dad …

… can always make more …

is that true?

Any more I’m not so sure. 

And what is money?

(I think of Sheldon “what is physics” and Penny “oh balls” #tbbt)

“Money is a matter of functions four, a medium, a measure, a standard, a store.” He repeated that four times like poetry. “Six Characters in Money: Portable – Durable – Divisible – Uniformity – Limited Supply – Acceptability.” — CHURCH 10●19●62 (Vol 1) 978-0-557-08387-9 page 110

But it’s both more and less than that!

More in the sense it is “time”. 

Gold is the ability to buy leisure.

Less in that it is NOT time. 

Everyone gets one life to spend as they see fit.

Who am I to tell someone they are wrong in how they spend their time aka money?

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