POLITICAL: The FDA is a roadblock


Can This Boy’s Life Be Saved?
The answer may depend on President Obama.
MAR 24, 2014, VOL. 19, NO. 27 • BY MICHAEL ASTRUE

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The January 31, 2014, Boston Globe front page included two life-and-death stories. One announced that the U.S. Department of Justice would seek the death penalty for Dzhokhar Tsarnaev, who is facing trial for the Boston Marathon bombing. Animated debate about the proper penalty for Tsarnaev continues around Boston.

The other story snapped my head back because it involved a death penalty for Jack Fowler, a 6-year-old boy dying of the more virulent form of Hunter syndrome (also known as MPS-II). The drug he needs to survive, which he is being denied, is one that I had first proposed in 2003 when I was CEO of a small biotech company focused on rare diseases. In 2005, after two years of developing this drug, Shire Pharmaceuticals bought my company over my objections, and I lost touch with the program. Jack’s situation is particularly compelling, but hardly unique.

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As everyone knows the Gooferment is immoral, ineffective, and inefficient. 

What’s surprising about this is that BHO44 hasn’t jumped on it.

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